ROHHAD FIGHT Inc. is a 501c3 nonprofit organization founded for Marisa, a Bayport girl with a rare disorder.  Our mission is to expand knowledge of the rare syndrome called ROHHAD (Rapid-Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation Presenting in Childhood), advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.

Upcoming Events

01 Aug 2016
08:00AM -
6th Annual ROHHAD FIGHT Inc. Golf Outting