Parent's Resources

We here at ROHHAD Fight Inc., are very compassionate and dedicated to helping the parents of children affected with ROHHAD. We have been through the struggle from the point of diagnosis through all the stages of this disease and would like to be a positive resource for those parents struggling. 


For those parents struggling financially with ROHHAD, we do offer assistance. If in need please complete the HIPAA authorization and Assistance Application which will be reviewed by the board and processed accordingly. If there’s anything that you think could improve our site please let us know.



Patient AirLift Services

Patient AirLift Services arranges free air transportation based on need to individuals requiring medical care and for other humanitarian purposes. Our network of volunteer pilots provide this service without compensation using their own or rented aircraft. In no case are fees of any kind charged for these services. Generally the individuals who utilize our services have limited financial resources or are receiving diagnosis, treatment or follow-up for various types of acute or chronic illnesses or conditions that make it either financially impossible or otherwise infeasible to use public commercial or private charter transportation.

Phone: 631-694-7257