Forms & Programs

Parent's Resources

We here at ROHHAD Fight Inc., are very compassionate and dedicated to helping the parents of children affected with ROHHAD. We have been through the struggle from the point of diagnosis through all the stages of this disease and would like to be a positive resource for those parents struggling.

For those parents struggling financially with ROHHAD, we do offer assistance. If in need please complete the HIPAA authorization and Assistance Application which will be reviewed by the board and processed accordingly. If there’s anything that you think could improve our site please let us know.


ROHHAD FIGHT Inc. is a 501c3 nonprofit organization.  Our mission is to expand knowledge of the rare syndrome called ROHHAD, advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.


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